Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes
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     November 19, 2008 Volume 14, Number 43 First Published in June 1995     
Chat Rooms CWD Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Upcoming CWD Conferences and Events
Marco 2009   CWD Focus on Best Practices
January 1-4, 2009
Marco Island Marriott Resort
Marco Island, Florida

Toronto 2009   CWD Focus on Pumping
March 6 - 8, 2009
Marriott Toronto Eaton Centre
Toronto, Ontario, Canada

Chicago 2009   CWD Focus on Technology
April 24-26, 2009
Renaissance Chicago North Shore Hotel
Chicago, Illinois

Orlando 2009   Friends for Life 2009 Conference and Expo
July 7-12, 2009
Disney's Coronado Springs Resort
Lake Buena Vista, Florida
View the Friends for Life 2008 Video

Reports from recent CWD conferences & events:
-- Bethesda, Quilt D.C. 2008, Orlando, Seattle, Marco Island, Minneapolis, Toronto
-- Upcoming CWD Conferences and Events


Headlines
Making a difference - and sharing it through Diabetes HOW.

Smiths Medical MD, Inc. has issued a voluntary recall notification to customers for the Deltec Cozmo® Model 1800 Insulin Pump. For more information, see www.cozmore.com/letter.

For those families interested in participating in CWD's Focus on Best Practices: Marco Island 2009 conference, please make your room reservations and send in your conference registration forms as soon as possible. CWD has expanded the room block and meeting space to acccommodate all those who wish to join us! This beachfront venue is entirely renovated and just beautiful! Hotel reservations close on November 28.

Make plans to attend CWD's Focus on Technology: Chicago 2009 conference, to be held at the Renaissance Chicago North Shore Hotel in Chicago, Illinois from April 24-26, 2009.

We have a brief report from the 2008 Diabetes Technology Conference, recently held in Bethesda, Maryland.

World Diabetes Day – a global event for children.

The 2009 Inspired by Diabetes competition has begun. Entries must be submitted by March 31, 2009. Note that for every contest entry, Lilly will donate money to IDF's Life for a Child program, which supports diabetes centers in developing countries that provide critically needed care and education for children with diabetes.

DiabetesMineTM announces the Holiday Survival Sweepstakes.

"Diabetes Dad" Tom Karlya Rejoins Diabetes Research Institute Foundation; Longs to fulfill promise of a cure for his daughter, others with diabetes.

You can read the report and watch videos from the Diabetes Research Institute Foundation's Diabetes 2.0 conference, recently held in New York. Free registration is required.

Kids from CWD's 2008 Friends for Life conference share their experiences with the ACCU-CHEK Multiclix Challenge.

The Diabetes HOWTM Coalition brings together multiple members of the diabetes community – patients and their loved ones, health care professionals, diabetes and public health organizations, and businesses – in an effort to inspire action at the community level that will improve the quality of life for people living with and at risk for diabetes. Tell us about initiatives that improve quality of life for people with diabetes taking place in your community so that others can learn from your experiences.

Visit Diabetes Handprint to submit the word in your hand. For every word submitted, OneTouch will donate $5 up to a maximum of $250,000 for the Diabetes Education and Camping Association (DECA) to support children's diabetes camps and to Taking Control of Your Diabetes (TCOYD) to support adult diabetes conferences. See also Annoucement about DiabetesHandprint.com and OneTouch® Teams With Online Diabetes Community To Launch Global Diabetes Handprint Project.

FDA Approves Rapid-Acting Insulin Apidra® for Treatment of Children with Diabetes (PDF).

CWD's first Friends for Life UK conference will be held at the Beaumont House, Old Windsor, Berkshire from August 14-16, 2009.

Vitamin D Supplementation in Early Childhood and Risk of Type 1 Diabetes: a Systematic Review and Meta-analysis. See also Vitamin D Lowers Diabetes Risk and Extra Vitamin D In Early Childhood Cuts Adult Diabetes Risk.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

Continuous subcutaneous insulin infusion leads to immediate, stable and long-term changes in metabolic control.

Prediction of Severe Hypoglycemia.

Subcutaneous glucose sensor values closely parallel blood glucose during insulin-induced hypoglycaemia.

The ADA's Legal Rights of Students with Diabetes is an authoritative and comprehensive tool for families seeking to ensure that their children with diabetes are afforded all of their legal rights while they are at school. This document is indispensable for all families. You can download the complete PDF from the ADA web site or from the Children with Diabetes web site.

The Family Support Network now includes over 3,900 families from 50 states and 76 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 677 panels.

-- Other news and information


Clinic
Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn about the work of Dr. Denise Faustman.


Chats
Grandparents are invited to join Betty, Rachele and Bruce for a special CWD Grandparents Chat from 9-10 pm on Thursday, November 20th in the Grandparents Chat Room.

Join Laura Billetdeaux for a chat about CWD's Friends for Life: Orlando 2009 conference. The chat begins at 9pm Eastern on Tuesday, November 25th in the Friends for Life Chat Room.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- Share recipes
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums
--  Mailing lists for readers from:
Australia New Zealand UK Finland

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.

Parents report that over 3,000 schools across the US support in-classroom blood glucose monitoring. Does your child's school? Check the Schools database and add information about your child's school.
-- Other information about diabetes and school


Featured Book of the Week

Quick & Easy Diabetic Recipes for ONE, Second Edition, by Kathleen Stanley, CDE, RD, LD, MSEd, BC-ADM and Connie C. Crawley, MS, RD, LD. Published by the American Diabetes Association, 2007. ISBN 1-58-040264-X. 152 pages. Paperback. $14.95.

Book Cover

If you are struggling to find recipes for one person, the ADA has put together just the book for you. In Quick & Easy Diabetic Recipes for ONE, you will find over 100 recipes for all kinds of tasty meals. In addition to the standard nutrition information, the authors have noted which recipes are high in sodium. Some recipes do contain nuts or nut products. The introductory pages offer good advise on portion control and how to make a meal for one worth while.

-- Review by Brenda Hitchcock

Amazon Books Order Quick & Easy Diabetic Recipes for ONE from Amazon.com
-- Other books nutrition and cooking
-- Recently Featured Books


Ask the Diabetes Team
Lately, my daughter's blood sugars have been over 200 mg/dl [11.1 mmol/L]. Why would this be? Could she be insulin resistant? Can she take Avandia? (19 Nov 2008)
-- Answers to over 18,500 questions
-- What's your question?
Subscribe to the DTeam Questions via RSS Add to Google Add to My Yahoo Add to My AOL Subscribe with Bloglines
Subscribe with PageFlakes Subscribe in NewsGator Online Add to netvibes


From the Diabetes Dictionary
Postprandial
Occurring after a meal. Example: Blood taken 1-2 hours after eating to see the amount of glucose in the blood would be called a postprandial blood glucose test.
-- More definitions


Surveys and Studies
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

Nemours is running a survey of parents of kids (up to age 18) with type 1 diabetes to understand how they learn about the potential long-term health risks of diabetes.

Researchers at Northwestern University are seeking participants in a study called Prevent Risks by Early interVEntion at Nighttime in Type 1 diabetes for Kidney Disease (PREVENTKD).

The University of Florida is studying Neulasta in patients with new onset type 1 diabetes.

Families are Needed Who Have an Infant Under age 5 Months or a Mother in the Last Trimester of Pregnancy and a Family Member with Type 1 Diabetes are highly encouraged to participate in the TrialNet NIP study.

NYU researchers are looking for teens with type 2 diabetes or teens with a BMI over 30, aged 14-19, for a study at the NYU Medical Center. The study involves two visits to the medical center, and includes cognitive testing (memory, etc.), a blood sample, and an MRI scan of the brain. Parental consent is necessary for those under 18. All volunteers will be financially compensated $100 for their time.

Behavioral specialists at the Joslin Diabetes Center and the University of Virginia seek help from parents who have children with diabetes from ages 6 to 11.

The University of California at Irvine has a new Exercise in Teens with Type 1 study.

Clinical Trials for Newly Diagnosed Type 1 Diabetes is seeking people ages 8-30 who have been diagnosed with type 1 diabetes within the past six weeks for the AbATE Trial.

The Type 1 Diabetes Genetics Consortium is seeking families with at least 2 siblings diagnosed with type 1 diabetes prior to age 35. They are also interested in having the parents participate, as well as other siblings without diabetes. In this study, researchers will be trying to identify genes influencing an individuals risk for developing type 1 diabetes. By furthering the knowledge of these genes, the researchers hope to prevent type 1 diabetes in the future.

Adult males with type 1 diabetes are needed for a study about Benfotiamine and Complications in New York.

A study on Autoantigen Vaccination In Human Type 1 Newly Diagnosed Diabetes Mellitus is seeking adults 18-35 who have been diagnosed with type 1 diabetes mellitus less than three months.

-- Other Studies


Diabetes Humor
The day after my daughter started pumping, she experienced a low, so I decided to pick her up from school. Imagine my surprise when the nurse told me "She's suspended." As she realized my eyes had widened, she corrected herself, saying, "Oh, I meant her pump."
-- More Humorous Tidbits

You know you're a parent of a child with diabetes when ...
... you wake in the middle of the night unable to sleep, roll over and gaze at your hunky husband just as the inevitable thought crosses your mind--better go take a quick blood sugar check.
--More Parent Humor


Living With Diabetes
Photo
-- More children with diabetes
 

Hi. My name is Michael. I am 10 years old. I live in Bristol, which is in England.

I have had diabetes since July 2002. I give myself up to 6 injections a day and do several blood tests which I do find a bit of a nuisance. As I have been a diabetic now for nearly 6 years I take it in my stride now.

My mum decided to take me to the doctors because I was drinking all the time, even getting up in the night to have a drink. They discovered my blood sugars were very high -- 18-19 mmol/l (324-342 mg/dl). I stayed in hospital for a week and my mum and dad learnt how to do blood test and injections.

Having diabetes does not stop me at all from doing things. I play football for a team where I am the goalkeeper. I love swimming, playing with LEGO, reading and playing with my friends.
-- Visit Michael's page

 

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Current Poll

  On an average day, how many times do you or your child do a blood glucose check?  
   

10 or more times

 
   

9 times

 
   

8 times

 
   

7 times

 
   

6 times

 
   

5 times

 
   

4 times

 
   

3 times

 
   

2 times

 
   

1 time

 
   

Less than 1 time

 


 

Poll Results

 

On an average day, how many times do you or your child do a blood glucose check?

 
     

10 or more times

 
 

23%

 

 
     

9 times

 
 

4%

 

 
     

8 times

 
 

14%

 

 
     

7 times

 
 

7%

 

 
     

6 times

 
 

14%

 

 
     

5 times

 
 

17%

 

 
     

4 times

 
 

10%

 

 
     

3 times

 
 

3%

 

 
     

2 times

 
 

2%

 

 
     

1 time

 
 

0%

 

 

 
     

Less than 1 time

 
 

1%

 

 
-- View Results & More Polls

Diabetes Marketplace
Featured Product


Diabetes Marketplace

Featured Recipe
Photo
Strawberry Smoothy
More Recipes

Top E-mailed Pages
1. Information for Teachers
2. Nick Jonas Reveals He Has Diabetes
3. Halloween and Diabetes
4. Type 2 Diabetes in Children
5. The Law, Schools, and Your Child with Diabetes
6. 2009 Conference and Expo
7. Toronto 2009 Conference
8. Carbohydrate Counting
9. Vanilla Cake with Cream Cheese Frosting
10. Sunshine Cake
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Top Rated Pages
1.   Nick Jonas Reveals He Has Diabetes
2.   Blood Sugar Converter
3.   Information for Teachers
4.   Continuous Glucose Sensors
5.   Diabetes Dictionary: A
6.   insuflon™
Top 20 Rated Pages

Find US Schools By
Blood Testing Rules

Find schools where blood testing is allowed


Restrict to schools with the following ZIP Code


Restrict to schools in the following state



Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com

Book cover
The Adventure of A Lifetime
Buy at The Diabetes Mall


Book Cover
NFL Veteran Jay Leeuwenberg Tackles Diabetes and Wins.
You can too!
Buy From The Publisher




Always remember that kids with diabetes are still kids
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Last Updated: Thu Nov 20 21:20:42 2008
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